CLL/SLL & health

Understand & living with CLL/SLL.

Canadian, plain-language education and peer connection for people living with chronic lymphocytic leukemia or small lymphocytic lymphoma—and the people supporting them.

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Educational information, not medical advice. Use these resources to support—not replace—conversations with your healthcare team.

Why I created this

You don’t have to navigate this alone

My personal CLL journey began with a phone call and the words, “You have cancer.”

Living with CLL/SLL brings questions that are not always answered during a short medical appointment. Test results can be confusing, terminology can feel overwhelming and even “watch and wait” can create anxiety rather than reassurance.

I created CLL/SLL & Health because I understand what it is like to live with these uncertainties. It offers clear explanations, practical questions and information intended to help people participate more confidently in their care.

This content does not replace professional medical advice, and every person’s experience is different. My goal is to help patients and caregivers feel better informed, less isolated and more prepared to ask questions, understand their options and advocate effectively for the care they need.

Peer support with a Canadian focus

CLL Community Canada

CLL Community Canada is a peer-led discussion group offering support for people affected by chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL). Whether you’re newly diagnosed, in treatment, caregiving, or adjusting afterward, you’re welcome here.

While our focus is on the Canadian experience—our healthcare system, treatment options, and support resources—everyone is welcome, no matter where you call home.

Visit the Facebook group

Choose your next step

Find the support you need.

innovaHub Explains

CLL/SLL videos from innovaHub Explains

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CLL/SLL · Video

The Canadian CLL Journey

Understand the broad stages of the CLL/SLL journey within the Canadian healthcare system. This plain-language overview covers diagnosis, watch and wait, treatment discussions and support resources, while emphasizing the importance of working closely with your healthcare team. It is designed to help people who are newly diagnosed, or trying to understand what may come next, organize unfamiliar information and prepare more useful questions for the healthcare professionals involved in their care.

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CLL/SLL · Video

Watch & Wait

Learn why many people with CLL/SLL are monitored before treatment begins, even though living with a cancer diagnosis without immediate treatment can feel difficult. In plain language, the video explains what healthcare professionals are watching for and why regular follow-up matters during this period. It offers general education to help viewers understand the purpose of watch and wait and prepare for conversations with their healthcare team; it is not medical advice for an individual situation.

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CLL/SLL · Video

Communicating With Your Team

Learn practical ways to communicate more clearly with the healthcare professionals involved in CLL/SLL care. This video explains how to prepare for appointments, ask focused questions, keep track of important information and work more confidently with doctors, nurses and specialists. The goal is to help viewers make care conversations feel more manageable and arrive better prepared. It provides general education only and is not medical advice; personal concerns and decisions should always be discussed with your healthcare team.

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